Charlotte Kenlyn Cornell graced us with her presence almost three weeks early on June 9th at 4:05pm. I started labor with her on my 30th birthday—what a birthday present! She was 7 pounds, 4 ounces and 21 inches long.
The day after her birth, Charlotte was diagnosed with Down syndrome. This came as a shock to us, as we did not have a prenatal diagnosis. A few days later, while still adjusting to the Down syndrome diagnosis, we found out that our little girl also has heart disease. She has a condition called AV Canal, which will require open-heart surgery on October 14th. As of right now, Charlotte's health has been pretty good. She is a darling baby with quite the personality. Charlotte smiles easily, is really laid back, and her new favorite trick is rolling over. She is also a champion sleeper (which Mike and I appreciate!).
We have been through many doctor's appointments the past few months. I feel as if we have visited almost every clinic at Children's hospital! Well, not every clinic--just Cardiology, Gastronology, ENT, Plastic Surgery, Genetics, and Pulmonology. Add in a barium swallow, a few chest X-rays, a sleep study, a bunch of blood work, a couple echos, and a CT and it makes for a fun summer! However, from all of these appointments we have learned more about Charlotte's heart condition, as well as a few other minor health issues. Right now the biggest concern is obviously her heart, but also her Pulmonary Hypertension. Hopefully both of these things will be improved after surgery. Eventually she will also need surgery to separate two fingers on her left hand and two toes on her left foot that were still fused at birth (this is not related to Down syndrome, she just got lucky...insert eye-roll here!)
Check back frequently, as it is easier for me to update here then to send individual emails or calls. We truly appreciate all the support--through calls, emails, gifts and meals, and your thoughts and prayers. I also would enjoy any comments left here, those of you who know me know how "web obsessed" I am! We blessed to have so many people that care so much for Charlotte.
I will update later tonight about her appointment today. We are off to dinner and to shop for the multiple birthday parties Katherine and Will have to attend in the month of October!
Oh yeah, and just because I love this picture....my beautiful girl: