Wednesday, April 16, 2014

Swinging into Spring.

Charlotte is feeling much better. We are happy to have her surgery behind us, and Charlotte back to her old self. She lost a little bit of weight due to her limited diet during recovery, but overall, it wasn't too bad. She is a tough cookie. 

Spring came to Wisconsin for a few days, and then left again. We are hoping it returns soon; I pretty sick of waking up to snow. 

One of Charlotte & Jack's favorite spring activities....

Hoping for more spring weather soon!

Wednesday, April 9, 2014

No Kay.

Charlotte is doing okay. We are coming up on a week since her surgery, and while she isn't back to her old self, she is powering through. With the exception of some weepiness, refusal to eat and/or drink at times, and not really knowing what she wants when we ask, she has been okay. Her new favorite word is "No Kay" ...a combination of no and okay, meaning maybe I want it, maybe I don't?!

We have been watching a ton of movies (thankfully she is off her Frozen kick and onto "Wreck it Ralph,"), and keeping her busy with all the great get well gifts she received from family and friends. We are grateful. 

Today we decided to get out and enjoy the nice weather by visiting the zoo. I thought a ride in the stroller would be good for Charlotte. However, she had other ideas and did not want to sit back and relax in the stroller and preferred to walk (which normally I encourage, but considering the heavy duty meds she is on and the little bit of food in her tummy, I figured riding would be a better option).

Luckily a train ride cheered her up.

However, when the ride was over, tears started flowing and it was time to head home for naps.

Thanks for checking in. Hopefully she will be back to her old self in no time. Special thanks to my parents and aunt for taking over her (and Jack's!) care tomorrow so I can attend a Special Education Law and Advocacy conference in Madison. I am looking forward to a whole day of no one "needing me" and learning some new things too!! I'll let you know how it goes.

Thursday, April 3, 2014


Surgery is done, and Charlotte is doing well. She is currently felling pretty good thanks to all the pain meds they gave her in the OR. 

We are settled in our room where we will stay tonight. Right now Charlotte is napping, and we may try a Popsicle when she wakes up. The nurses all tell us what cute, polite girl we have (not many kids thank them for taking their blood pressure apparently). 

More updates to come....



Not a fan if all the junk on her feet. They couldn't get an IV started in her arm (she is a tough stick, and is covered with poke marks now, ugh) ....

Wednesday, April 2, 2014

Bab-baids and Popsicles

We are going to try this tonsil/adenoid surgery thing again. Charlotte is scheduled for surgery tomorrow morning at 9:30AM. Knock on wood, Charlotte is healthy, not even a runny nose. 

Today we went to Target and stocked up on post-surgery necessities; ice cream, popsicles, a new magna doodle, and bab-baids (bandaids...Charlotte's cure-all for everything, I am sure she will be requesting them after surgery).

I think we are ready. I'll post an update tomorrow night from the hospital. Thanks for thinking about us! 

Sunday, March 30, 2014

Button Coat

Last Friday, I was getting the kids ready to drop Charlotte off at school. Charlotte followed me to the mudroom as I gathered shoes and coats for everyone.

 I held up two coats and asked Charlotte, "Purple or brown?" (giving her a choice at which one she would like to wear that morning)

She replied, "Button coat."

Me: "Button coat?"

C: "Button coat." (pointing at the coat rack behind me)

I realized she was pointing to her denim coat; one she has only worn a couple of times this spring, as here in the midwest, we are still experiencing frigid temperatures requiring winter coats.

Me: "It is cold outside today, and if you go outside at school you need to have a heavier coat. Which one, purple or brown?"

C: "Button Coat" (stomping her foot)

I explained again why she needed to wear a heavier coat.


Me: See above explanation...I repeated this to her about four different ways, knowing she knew exactly what I was telling her, but it didn't seem to matter

C: "I MAD! I WEAR BUTTON COAT! I MAD!" (running away and stomping her feet all the way down the hall, through the kitchen and into the living room)

I stood there for a second, giggling to myself. Charlotte's stubbornness and need for independence reminds me so much of Katherine's at times. A lot of parents may have been upset at this point, but I have got to tell you, I was feeling pretty proud. Charlotte had just thrown her first "big kid" temper tantrum. She didn't throw herself on the ground, and she didn't cry. She communicated with me what she wanted, and told me exactly how she felt when she didn't get her way. However, I couldn't let her see that I was proud of a tempter tantrum, nor could I give in to her demands.

I walked into the living room and laid both the purple coat and the brown coat on the floor. I told her I was going to put Jack in the van, and she needed to get her coat on because we were going to be late for school.

I fully expected to have to go and force a coat on her and carry her to the car kicking and screaming. Much to my surprise, as I was buckling Jack in the car, I looked up and saw Charlotte standing in the doorway. Her brown coat on, asking me to "helper me zip."

She never ceases to amaze me.

Oh, and the good news? The temperatures this weekend actually hit 50 degrees, meaning the button coat could be worn. We had one happy girl.

Friday, March 28, 2014

Checkin' in.

I was doing so well with blogging on a regular basis...and then life got in the way. Charlotte had a case of strep, and the rest of us ended up with a icky stomach bug (which stretched out over a week, with all of us taking turns getting it...nothing like dragging things out to make it really fun). I realized I completely missed World Down syndrome day, as that was the day Katherine & I were confined to the couch recovering from illness.

We are better now. I could catch up on the happenings around here, but all four kids are actually in bed and sleeping, and Mike just rented a movie for us to watch. I promise to be back soon, but until then, here are some pics from the last few weeks to help fill the void.

World Down syndrome Day "Sick day selfie" 

Happy weekend!

Friday, March 14, 2014

Learn to speak Charlotte-eze.

About a year ago, Charlotte's spoken language started to develop by leaps and bounds. I remember the exact time frame because it was a couple months after her Celiac disease diagnosis when she started to blow us away by incredible speech and language growth. Slowly over the last year her spoken language increased and her signing decreased. She now no longer uses any signs (with the exception of helping us teach Jack "more" and "all done"), as spoken language has completely taken the place of those signs.

Her speech and language skills are still delayed, and in no way at the same level of her typically developing peers. However, these days, she has no problems expressing her wants and needs with us. At times she is hard to understand, as her articulation needs work, but phrases and sentences are becoming more and more common and it is exciting for us to see her now be able to be understood by individuals outside of our family and friends who are around her on a daily basis. 

She has come up with a few words/phrases of her own though, that only those of us closest to her know the meaning of. They make me smile when she uses them, and I wanted to blog about them in order to document it for us to look back at someday. 

In order to hang with Charlotte, here are a few words/phrases that may need translation:

- "climber" : She wants to sit on your lap. I believe this comes from us telling her to "climb up" when she would bring us a book to read. Note: if she asks you to climber, she must really like you as not everyone receives this privilege. 

-"meal-mellow" : Marshmallows. Our current treats for success on the potty. Remember to give them to her in pairs though, as Charlotte always will ask for "two meal-mellows please." 

- "o-zen" : Frozen. She wants to watch or listen to the "Frozen" soundtrack. Unfortunately "frozen" and "lotion" sound very similar and for awhile she was getting frustrated when I was offering her moisturizer and she wanted to hear "Let it go." 

-"Gotch you": She wants you to pick her up and carry her. She usually asks me to "gotch you" when she gets up from her nap, as she wants me to carry her downstairs because she is still tired. This one I also think comes from me saying "I got you" when I would pick her up. She also says "gotch you" when she wants to hold Jack. 

-"Helper me?": This question usually comes when I am in the kitchen, and she wants to help me. We are working on pronouns, and I always repeat back the correct way it should be said, but I can't help but smile when she asks to "helper me." Her current favorite job is setting the table. 

-"Boo-boo": Her nickname for Jack. Though she also calls him Jack, Jackie, Baby, and Goober; Boo-boo is probably the one we hear most often. 

-"Bab-baid" : Bandaid. A few months back, Jack scratched her and Charlotte received her first bandaid. Now whenever she is hurt (whether it be physically or her feelings hurt), she asks for a bab-baid. Apparently it fixes everything. 

I am sure there are more, but these are some of the ones we hear the most. I tried to get a video to demonstrate some of her language skills, however, as you can see in what I did end up capturing, she is quite the stubborn little 3 year-old. 

Have a great weekend everyone!