30-50% of babies born with Down syndrome also have a heart defect. The good news is that many of the defects do not need to be repaired, and the ones that do have a very high success rate.
Charlotte's heart defect, Complete Atrioventricular Canal, is one of the most common heart defects found in babies with Down syndrome. I am not going to lie, one of the hardest things I have ever done was hand my 4-month old over to endure open heart surgery. However, I am so very thankful that we live in a time where it was possible to repair her heart.
A year ago, I was enduring some of the hardest days of my life; the days leading up to Charlotte's surgery. Those reading this whose child may be facing a surgery in the near future, know that the anticipation is the hardest part. Hang in there.
What is a factoid post without a cute pic of my girl? Or in this case, both my girls. This is from a birthday party this weekend.