After a few days at home, I wish I could report that Charlotte is healthy and has returned to her usual, happy self. Unfortunately, that isn't the case. My girl is clingy, cranky, and all around just doesn't feel well. Getting her to eat and drink is quite the feat, and I have resorted to vanilla ice cream for lunch a few times just to get something in her stomach. She is weak, hardly walking, still having major intestinal stuff going on, and has lost more weight.
We know that it is going to take awhile for her body to heal itself. The nutritionist we met with yesterday told us to expect at least two weeks before we see a change, and a few months before we see a major difference. We spent a few hours at Children's yesterday learning about about gluten-free living. It is interesting to see how diagnoses effect everyone differently; there were a couple other families in the training with us, clearly rocked by the loved one's Celiac diagnosis. Mike and I are actually happy to have this diagnosis; not that we ever what something to be wrong with our child, but compared to what I thought she was going to be diagnosed with early this week, we are thrilled she has something that can be controlled by diet.
So, we truck on. I offer her multiple types of food all day long in hopes that she will eat. Right now, it isn't that she is turned off by gluten-free food, but rather just food in general. She associates food with making her feel crummy, so she doesn't want it. The one thing she does want is to nurse, which at this point, I am happy that she is at least getting some good nutrition in her belly a few times a time. However, because she is still nursing, I also have to be on a gluten-free diet. I will get to know first hand what she will experience the rest of her life.
Charlotte at dinner tonight; lots of choices, but nothing looked good to her.
Thanks for checking in! We are going to attempt to have a relatively normal weekend, I'll let you know how it goes. Enjoy your weekend!