Friday, April 27, 2012

Problem solving at its finest.

This is how we keep Charlotte out of the wood box next to our fireplace:

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Apparently, it isn't working any longer. Thanks to Charlotte's incredible flexibility, she has conquered this obstacle.

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Back to the drawing board.

Oh, and if you are wondering why she is shirtless, it was pizza night and she was wearing a white shirt. 


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Thursday, April 19, 2012

So, what did I think?

Last week I promised a book review of Kelle Hampton's Bloom. It seems as soon as I make promises, life gets crazy. Sickness, spring break, and the craziness of raising three kids has gotten in the way this past week. Most nights I fall onto the couch to relax after my crazy days, exhausted, and aimlessly flip through the channels or web surf because it doesn't require any extra effort. In actuality I should be diving into the textbook sitting on my end table ("Effective Methods of Inclusion"...for my teaching license renewal, though there will be some personal gain from this class I am sure!), but I haven't mustered up enough energy to start that one yet. Soon. Instead, I will blog.

So, what did I think?

I didn't preorder the book, and I wasn't sure if I would want to read it as soon as it came out. I actually had a lot of mixed feelings about it. I found Kelle Hampton's blog shortly after Charlotte's birth. At the time, it was exactly what I needed. While digging through website after website of scary statistics and all the health issues my newborn may face, Kelle's blog was a breath of fresh air. Beautiful pictures, a carefree approach to the world, and words that painted a picture of a joyous life. Her blog showed me that I would feel okay again one day, and joy would return to my life.

I did end up buying Bloom for my Kindle the day it came out. My apprehension about reading the book came from knowing that reading someone's account of their birth experience of a child with Down syndrome would hit pretty close to home for me. Kelle and I have a few things in common; we were (are) both teachers, both in our early 30's when we had our child w/DS and both have older children. I relate a lot to what she writes and I was worried that reading her book would force me to revisit feelings I have since put behind me.

I read the book in two nights. It was a quick, easy read and it delivered everything the book trailer promised. It was hard for me at times; more than once I found myself dabbing away tears. I appreciated Kelle's honesty as she recounted Nella's birth and early days. I was most touched by her description of the first time her older daughter met Nella, and how at first it was hard for her to witness because all she could think of was the "sister relationship" she had built in her head for her girls and how it wasn't going to be at all like she imagined. This was something Mike and I struggled with in the beginning; Mike having three sisters, me having three brothers, neither of us had experienced the bond of a same-gender sibling and were excited to witness this relationship between our girls. We mourned this in the early days, only to realize later that we didn't need to.

I have read a few posts about reactions to Bloom on the Down syndrome message board I frequent. Some are turned off by Kelle's approach to her blog and, really, to life. Some thinks she makes life look too perfect, and doesn't give an honest account of what raising a child with a disability is like. Kelle's blog existed before the birth of her daughter Nella, and I personally enjoy how she has kept it pretty much the same, while including advocacy and awareness when she sees fit. I believe Kelle is doing a lot of good for the Down syndrome community, and Bloom (which was #11 of the best seller list last week!), is bringing awareness to Down syndrome that wasn't there before.

I tend to be an optimist when I blog. I enjoy reading blogs and books written by other optimists. When I write about  raising Charlotte and what a joy it has been, I mean it. This doesn't mean I am not constantly waiting for the other shoe to drop. It is hard not to think about those scary statistics and wonder what health concern we will have to deal with next. It doesn't mean that I don't already have anxiety about sitting through my first IEP meeting...and it is still a year away! It doesn't mean that I am not freaked about the future, the unknown of what adolescence and adulthood will be like for my daughter. It also doesn't mean that I don't constantly think about the first time any of my children have to face ignorant bully.

However, I tend to focus on the joy, because frankly, why wouldn't I?! Everyone has fears and worries about future problems that one can't control. I, like Kelle, try not to focus too much on the negative, because I would rather concentrate on the pretty awesome things happening right before my eyes.

I recommend Bloom to anyone looking for a good, heartfelt story. Check it out.

Wednesday, April 18, 2012

New Chew Toy.

Someone has a couple molars working their way through. We bought that same someone her first pair of crocs the other day, and she has since found her new shoes double as some relief for her sore gums.

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I realize this picture makes us look like horrible parents; yes, that is my almost 2 year-old chewing on a shoe, while laying on a treadmill (no worries, the key is never anywhere near the treadmill when we aren't using it), with a bunch of electrical cords right behind her.

Sunday, April 15, 2012

Back to reality.

Spring break is over. Tomorrow, the older kids go back to school, Charlotte's therapy break ends, and we go back to our crazy routine.

It was a good break. We spent a lot of time playing outside, relaxing, visiting friends, and enjoying each others company.

Here are the highlights of the past few days:

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The morning after Charlotte's crappy croup. She recovered, thankfully, very quickly.

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Mike joined the Arbor Day Foundation. These are his free TEN trees...yes, all ten trees fit in our mailbox. We plan to spend the summer nurturing these sticks into full grown, beautiful evergreens. Well, maybe at least one will make it through the next few weeks?!

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Bubbles.

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A day trip to Madison started with lunch at Ella's Deli.

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Will was thrilled by his giant root beer float.

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Love my sweet little man.

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Carousel is always a hit.

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Charlotte's first ride; she wasn't so sure about it.

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We also dodged rain drops and spent the afternoon at the Madison zoo.


Hope you have a good week! Back to reality...

Wednesday, April 11, 2012

Crappy Croup

I had intentions to write a pretty involved post tonight. But, Charlotte caught croup and I am running on about two hours of sleep. This is my first experience with one of my kiddos and croup, and I gotta tell you, I'm not a fan. It is pretty dang scary, and as I sat holding my baby last night in a steamy bathroom while she struggled to breathe, my brain knew she was going to be just fine, but my heart strings were being tugged at in a major way.

Luckily, Charlotte is a pretty good sport. These pictures were taken at about 4AM (sorry for the poor quality, low light + cell phone = crappy pics, but you get the gist of it!).

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Playing the iPad.

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Pretending to go "night-night."

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This pic was at about 6AM, when she finally fell asleep after about 4 hours of being awake, though you could hear her breathing from a mile away.

A trip to the pediatrician this morning ended with a breathing treatment (which she was NOT a fan of), a dose of an oral steroids, and a script for a few more doses if needed over the next few days. She is doing much better tonight and I have high hopes for some better sleep; though I did leave the chair in the bathroom just in case.

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Happy to have a new batch of books to look through at the doc's office.

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She certainly doesn't look sick, does she? Quite the trooper she is.

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A popsicle make everything better.

I am thankful Charlotte is a pretty healthy kid. In fact, this was the first time I had been to the pediatrican for a sick visit in over a year (with any of my kids!). We are lucky, and I have so much respect for everyone out there who deals with all these dang breathing issues on a regular basis. You are my new heroes, cuz it sucks.

Night ya'll.

Sunday, April 8, 2012

Weekend Roundup

Happy Easter!

We had a busy, yet fun weekend complete with a variety of activities, including...

Coloring eggs...

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An Easter egg hunt in our backyard with good friends...

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Playdate with old neighbors (whom we really miss having next door!)...

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(Charlotte is no longer an easy subject to photograph...this is her new "smile" face!)

"Shrek the Musical" with the big kids

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Searching for Easter baskets this morning...

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and celebrating Easter with family.

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*****

I hope you had a wonderful Easter celebration! We are looking forward to the week here; the older kids are off of school for Spring break, and I canceled all of Charlotte's therapy as well. We anxiously awaiting playdates with old friends, checking a few parks in the area, and relaxing and enjoying a change from routine.

Also, last night I finished Kelle Hampton's new book, Bloom. I will be back in a few days to let you know what I thought.